Patient Experiences

Illustrative composite stories about schizophrenia, recovery, setbacks and daily life. These are not verified individual testimonials.

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Losing my religion after a psychotic episode

After my first hospitalisation, I could not pray without my chest tightening. The faith of my childhood and the delusions of my illness had gotten too tangled to separate.

Three weeks in county jail with untreated schizophrenia

I was 24 when I was arrested for trespassing during a psychotic episode. I spent three weeks in county jail with no medication and no idea what was happening. This is what got me out and what almost did not.

What it's like to fall in love with someone who has schizophrenia

I met James in a rock-climbing gym in Denver. He told me about his schizophrenia on the third date. Five years and one wedding later, here is what I have learned.

My grandfather had schizophrenia too: three generations of the same diagnosis

I am 29 and the third generation in my family with schizophrenia. The diagnosis was not a surprise. The grief, the comfort, and the questions still were.

My mother had schizophrenia. So do I.

I grew up watching my mother live with schizophrenia. When I was diagnosed myself in my twenties, I had to learn the difference between her illness, mine, and what we shared.

My first Thanksgiving after the hospital

I was discharged from the hospital ten days before Thanksgiving. I almost did not go. I am glad I did, and I am glad I had a plan.

Moving cross-country for a better clinic

I moved from rural Wyoming to Boston so I could be a patient at a specialised early-psychosis clinic. The move took a year of planning. It was worth it.

Starting an online support group for women with schizophrenia

I started a small online support group for women with schizophrenia two years ago. There are 34 of us now. This is what I wish I had known on day one.

Saying no to medication, then changing my mind

I refused medication for two years after my first hospitalization. I'm 31 now, three years back on it. This is what changed my mind.

Recovering from postpartum psychosis: the year after

I developed postpartum psychosis four days after my daughter was born and was hospitalised within a week. The year that followed taught me what recovery actually looks like for new mothers.

It took five medications to find the right one

An honest composite account of the years it can take to find an antipsychotic that works without breaking other parts of your life.

Turning 50 with schizophrenia

I was diagnosed at 22. The day I turned 50 felt impossible — partly because I had not expected to live this long, and partly because I no longer remembered how to be a person without this illness.

Finding faith after psychosis

I was 32 and an atheist when I had my first psychotic episode. Three years later I started attending a Quaker meeting. The faith I have now is small, careful, and one of the steadiest things in my life.

Learning to cook again on clozapine

Clozapine gave me my life back and twenty pounds I did not want. Learning to cook real food in a small apartment was how I got the weight stable and the constipation under control. Here is what worked.

Starting therapy after 20 years of just medication

I was diagnosed at nineteen and given an antipsychotic. Twenty years later, at thirty-nine, I started therapy for the first time. It changed my life.

Choosing not to have children with schizophrenia

I am 35 and I have decided not to have biological children. The decision was not simple, the grief was real, and the life I am building is my own.

Graduating from college with schizophrenia

I had my first psychotic break the second week of my sophomore year. Five years later — with two leaves of absence and a switched major — I walked across a stage. Here is what got me there.

Starting volunteer work as a step toward employment

I had not held a job in seven years. I started volunteering four hours a week at an animal shelter. Eighteen months later, I had a part-time paid job. The volunteer work was the bridge.

My recovery after a stint in county jail

I was arrested during a psychotic episode and spent 62 days in county jail. The recovery afterwards was harder and longer than the recovery from any of my hospitalizations.

Growing up as the sister of someone with schizophrenia

My brother got sick when I was nine. I am 34 now. I am still figuring out what that did to me, and what I want to do with it.

Learning to cook for myself in recovery

I lived on frozen pizza for four years. The reason was not laziness. It was that my brain could not hold a recipe in working memory long enough to follow it.

Learning to ask for help

I spent thirty years not asking for help. The decade I have spent learning to ask is what has kept me out of the hospital.

Living alone for the first time at 35

After eight years in a group home, I moved into my own one-bedroom apartment. It was terrifying, lonely, and the best thing that has happened to me. Here is what the first year actually looked like.

Accepting that I cannot work full-time

It took me eleven years and three breakdowns to admit that a forty-hour week was not in my body. This is what I built once I stopped trying.

Living in a group home: what it's actually like

When I moved into a six-person group home in 2023, I was sure it was a step backwards. Three years later I think it was the most useful housing decision I have made.

Years of misdiagnosis: finally hearing 'schizoaffective'

I am 41. I was diagnosed with depression at 19, with bipolar at 24, with borderline at 30. I was finally diagnosed with schizoaffective disorder at 37. This is what changed.

Life as a veteran with schizoaffective disorder

I served eight years before my first episode. Navigating schizoaffective disorder as a veteran has meant learning a different kind of mission — and finding a different kind of brother- and sisterhood.

Supporting my brother through schizophrenia (sibling perspective)

A composite story of being the older sibling of someone with schizophrenia — what helped, what did not, and what I wish I had known earlier.

The day I chose a peer respite over the ER

Two years ago I felt myself sliding toward an episode. Instead of driving to the ER, I called a peer respite house. Five days later I went home stable. Here is why I would do it the same way again.

When and how I disclose schizophrenia on dating apps

I have been on dating apps, on and off, for six years with schizophrenia. I have made every disclosure mistake there is. Here is the practice I have settled into.