Patient Experiences

Illustrative composite stories about schizophrenia, recovery, setbacks and daily life. These are not verified individual testimonials.

Schizophrenia Overview Psychosis & Episodes Medications Side Effects Famous People with Schizophrenia Patient Experiences CBT for Psychosis Hospitalisation & Crisis Lifestyle & Wellbeing For Families & Caregivers Engineering Schizophrenia Research

I finally agreed to try clozapine

Clozapine had been on the table for me for nine years. I refused it for nine years. The conversation that finally moved me was not the one I had been expecting.

When my mother finally stopped believing the TV was watching her

For three years, my mother covered her television with a bedsheet at night so it could not see her. The morning she walked into the living room and asked me to take the sheet down was the morning I knew she was coming back.

Finishing my master's degree after my first psychotic break

I had a psychotic episode in the second semester of my master's program. I took two years off, came back part-time, and graduated. Here is what made the difference.

What CBT for psychosis was actually like for me

I went into CBT for psychosis assuming it would be like talking to a friend. It was not. It was more like learning a new language about my own mind.

Running my first marathon with schizophrenia

I was diagnosed with schizophrenia at 24 and ran my first marathon at 36. The training did more for my stability than I had expected — and less for my voices than I had hoped.

Ten years into recovery from schizophrenia

A composite reflection on a decade of life after a schizophrenia diagnosis. The dramatic part was the first year. The interesting part was everything since.

When my psychiatrist quit and I found a better one

My psychiatrist of eight years gave me two months' notice that she was leaving practice. I was furious, scared, and — eventually — better off.

Living with a roommate when you have schizophrenia

I am 28, I have schizophrenia, and I have lived with the same roommate for two years. Here is what we figured out about sharing 800 square feet, honestly.

The first week out of the hospital

The hospital felt like a fortress. The first week home felt like trying to live inside a thin paper bag. Here's what got me through.

Learning to cook again: rebuilding executive function

I am 26 and for two years after my first episode I could not follow a simple recipe. This is the story of how I learned to cook again, and what came back with it.

Building a life after five hospitalizations

Five hospitalizations across seven years taught me that stability is not a single decision. It is a thousand small ones, repeated, until the pattern of my life finally changed.

Paying off the debt I racked up during psychosis

I came out of psychosis with a diagnosis, two new medications, and forty-two thousand dollars in credit card debt. Five years later it is paid off. Here is exactly how.

My cat helped me through psychosis

I adopted Murray two months before my first hospitalisation. He has, in the years since, been the steadiest thing in my life — and the reason I get out of bed.

Starting at a new clinic after a move

I had been with the same clinic for six years. Then I moved across state lines for a job. The four months between losing my old team and trusting my new one were some of the hardest of my recovery.

Retiring at 62 with schizophrenia

I retired six months ago at 62 from a forty-year career. I have schizophrenia. The retirement transition has been harder and better than I expected, and nobody warned me about either part.

Dating apps and schizophrenia: what worked, what didn't

A year and a half on the apps, three serious dates, two disclosures, one relationship. Here is what I would tell my past self about dating with schizophrenia in your late twenties.

The day I stopped my meds, and what happened next

A composite story about what happens when you stop your antipsychotic on your own. The first weeks felt like clarity. The next year did not.

How I told my children I have schizophrenia

My kids had figured out something was wrong long before I told them anything. The day I finally explained it, I learned how much they had been carrying alone.

How I explained my schizophrenia to my kids

My kids were six and nine when I sat them down at the kitchen table and told them what schizophrenia was. Here is exactly what I said, and what I would change.

Building an online community with schizophrenia

I started a small online community for people with schizophrenia after a particularly isolating year. Five years later it has thousands of members — and has changed how I understand my own illness.

Finding my faith again after religious delusions

After my episode I could not walk into a church for three years. The thought of God was tangled up with the worst weeks of my life. Here is how I slowly came back to faith without going back to the delusions.

How my faith tradition supports my recovery

My grandmother taught me to pray before she taught me to read. When I was diagnosed with schizophrenia at 30, my church did not save me. But it held me while medication and therapy did the saving.

Life after twenty years of psychosis

I was diagnosed at 20. I am 47. The first twenty years were chaos. The last seven have been a life. Both belong to me.

Learning to trust a new psychiatrist after a bad one

My first psychiatrist made me feel small. My new one took two years to earn my trust. This is what made the difference.

Life after my involuntary hospitalization

A composite story about being held involuntarily in a psychiatric hospital — the anger, the loss of trust, and the slow practical work of coming back.

Switching from haloperidol to an atypical: my year of changes

I was on haloperidol for eleven years. Switching to an atypical was the hardest medication transition of my life and the best decision I have made for my body. Here is what it actually felt like.

Dating after I became stable

I had not been on a real date in five years. The first time I tried, the hardest part was not the conversation about my diagnosis — it was figuring out who I was without it being a crisis.

Finishing my degree with schizophrenia

A composite story of finishing a college degree after a schizophrenia diagnosis — what worked, what did not, and what graduation actually felt like.

My first prescriber was wrong about my diagnosis

For two years a kind, busy general psychiatrist told me I had anxiety and depression. The voices and the strange beliefs got louder. The day a different clinician asked one different question, everything moved.

My first day back at work after a relapse

Six weeks of leave. A new medication. A new dose. And a conference room full of people on a Monday morning who knew I had been gone but did not know exactly why.