Patient Experiences

Illustrative composite stories about schizophrenia, recovery, setbacks and daily life. These are not verified individual testimonials.

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Moving across the country for better psychiatric care

I left a town of 4,000 people in Wyoming to find a psychiatrist who would actually answer the phone. It worked, but it cost more than I knew how to count.

Parenting while on antipsychotics: an honest day-to-day account

I am 36, I have two kids under ten, and I take an antipsychotic every night. This is what an ordinary week looks like — without sugar-coating and without despair.

Why I'm grateful for clozapine, weekly blood draws and all

Three antipsychotics didn't work. Clozapine did. Here is what the first year of weekly blood draws, drooling pillows, and quieter mornings actually looked like.

How clozapine gave me my life back (a composite story)

After eight years and four medications, my psychiatrist suggested clozapine. This is a composite story of what it actually looks like to start it — the blood draws, the drooling, and the quiet return of an ordinary life.

My grandmother died and I stayed stable

My grandmother died in February. She had raised me. I have schizophrenia. I stayed stable through her illness, her death, and the funeral — and that quiet fact is its own kind of recovery.

Losing my driver's license to a hospitalization, and getting it back

After my third hospitalization, the state pulled my driver's license. It took eighteen months to get it back. The story is not the lecture I expected.

Starting college after my first hospitalization

I was hospitalised in July, diagnosed in August, and started college in October — three weeks behind every other freshman. Here is how the next four years went.

Raising my niece while managing schizophrenia

My sister died when her daughter was four. I was the only family member who could take her in. I was also living with schizophrenia. Five years later, we are doing okay.

Moving to a rural town for the quiet

I left Brooklyn for a town of 1,800 people in upstate New York. The quiet was the medicine. Access to care was the cost.

Coming back from rock bottom: my year on the streets

I spent fourteen months sleeping outside in Phoenix during an untreated psychotic episode. This is what got me back inside, and what it took to stay.

Accepting disability: my journey to applying for SSDI

I am 38 and I spent ten years refusing to apply for disability. This is the story of why I finally did, what the process actually looked like, and how it changed my life.

How I told my employer about my schizophrenia

I spent three years at my company before telling anyone. When I finally did — partly out of necessity, partly out of exhaustion — almost nothing about my job changed. Here is what the conversation actually looked like.

Living with schizoaffective disorder (a composite story)

It took three psychiatrists and seven years for someone to use the right word for what was happening to me. This is a composite story of life with schizoaffective disorder.

Apologizing to the people I hurt during my psychosis

Three years after my second hospitalization, I started writing letters to the people I had frightened, lashed out at, or pushed away during the episode. Some answered. Some did not. The writing changed me either way.

My grandparents finally understand my schizophrenia

My grandparents grew up in a generation where schizophrenia was something whispered about and hidden. It took five years for them to come around. The thing that worked surprised me.

When my cat died and I stayed stable

I had told myself for ten years that I needed Bartholomew to stay stable. When he died, I learned something different about myself.

Surviving the holidays with schizophrenia

Disrupted sleep, full houses, alcohol, and questions from relatives — the holidays used to land me in the hospital almost every other year. Here is what changed.

Why I started a podcast about my schizophrenia

Two years ago I started recording short, monthly episodes about living with schizophrenia. The audience is small. The effect on my own recovery has been larger than I expected.

Forgiving myself for what happened during my psychosis

The medication was the easy part. The forgiveness took six years. I want to write about what that looked like, because nobody had told me forgiveness was a treatment too.

How swimming laps helped my recovery

I started swimming laps because my psychiatrist asked me to try one new thing. Three years later, the pool is the most important part of my week.

The day my mother finally took my schizophrenia seriously

For seven years my mother told me my schizophrenia was 'just stress' and I should try harder. The day she sat in the family group at NAMI, something shifted. We are still rebuilding, slowly.

How I became a peer support specialist

Eight years after my first hospitalisation, I sat for the certified peer specialist exam in Pennsylvania. Here is what that path actually looked like.

Reconnecting with faith after a religious-themed psychosis

My first episode came with vivid religious content. For two years afterwards I could not set foot in a church. This is the story of slowly finding my way back.

Dating with schizophrenia: when to disclose

I have had three serious relationships since being diagnosed with schizophrenia. The disclosure conversation has gone differently each time. Here is what I have learned about timing, framing, and being chosen.

Losing and regaining custody of my child

I lost custody of my son during my second hospitalization. I have shared custody now, four years later. Here is the long, careful road that made it possible.

Moving back to the suburbs at 40 to be near family

I lived in Brooklyn for fourteen years. At 40, I moved back to a suburb in New Jersey to be twenty minutes from my parents. The decision was not the failure I had feared.

How I stopped blaming myself for being sick

For seven years I told myself that if I had been stronger, smarter, or less weak, I wouldn't have gotten sick. It took a long time to put that story down.

Going back to work after the psychiatric hospital

Three weeks in a psychiatric hospital can change a lot, including the question of whether you can do your job. A composite story of going back.

My first year on an ACT team

After my fourth hospitalisation in two years, my case was assigned to an Assertive Community Treatment team. The first year was a strange, intensive, surprisingly steadying experience.

When my roommate had a relapse

We had been roommates for two years. The first sign of his relapse was that he stopped showering. The last sign, three weeks later, was the apartment manager knocking on our door at 4 a.m.